Baker of Gasport has Periventricular Leukomalacia (PVL) with Cerebral Palsy, which
affects his motor skills. PVL is characterized by the death of the white matter of the brain due to softening of the brain tissue.
Premature babies are at the greatest risk of the disorder. Jeremy and his twin brother Evan were born prematurely at 26
weeks. Jeremy weighed 2 lbs 15 oz while Evan weighed 1 lb. 13 oz.
Jeremy cannot walk and has difficulties using his hands, but his mind works just fine.
He has been undergoing physical, occupational and speech therapy.
Jeremy currently attends
pre-K at Summit Educational Resources, where he is learning
his ABCs and can count to 14. Next year, he'll join his
siblings at Roy-Hart.
Jeremy needs a special motorized wheelchair, a wheelchair van and a lift to get upstairs to his bedroom. The cost is in excess of $30,000 and the insurance company only pays one half.
To help cover those costs, there will be a fundraiser for young Jeremy on April 27, 2013
1 PM to 5 PM
at the Elks Lodge at 1805 Factory Outlet Boulevard in Niagara Falls.
Tickets are $10 in advance - $15 at the door.
Buy a ticket and have a chance to win $100. You DO NOT need to attend the benefit to win.
There will be food, raffles, a basket auction, a 50/50 split, and various vendors.
Some prizes include:
a 50 inch TV, a Kentucky Vacation, Cleveland Indians Box Seats package, BBQ Grill, patio set,
"Jose Reyes" Autographed Baseball, tools, and huge variety of gift cards.
Entertainment will be provided by Buffalo Country Band.
If you want to help out, or learn more about Jeremy, visit the Jeremy's fund website at: http://jeremysfundraising.yolasite.com/