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This devastating disease is a genetic motor neuron disease affecting the voluntary muscles. She will never be able to sit up, crawl, walk, or even hold her head up. Payson already has lost the ability to swallow and feed and eats through a G tube through her stomach. Her life expectancy is 2 years old.
However with your help, they hope to make Payson as comfortable as possible and get her into clinical trials as well as pay medical expenses.
There will be a benefit for Payson at the Hartland Fire Company, Sunday, November 7th, from 1 – 7 pm. Cost is $15.00 per person. Children 10 & under free. Food, pop, and beer will be provided.
They will be holding a Chinese auction. Music entertainment by Dj mic & DJ Avalanche. There will be face painting & kids fun, too.
For basket donations call Renee at (716)864-8163 or Stephanie at (716)795-9740